We have met many wonderful children with 22q. We are grateful to the families who have come forward and shared their stories with us, to gain understanding and shed light on some of the milestones, setbacks, and steps of dealing with the disorder. We are learning that this is a young community-but greater in number than once thought, so we’d like to help encourage communication and learning through our website, to help families navigate through the disorder. Parents and Friends contact the Foundation all the time with questions about options for treatment, and milestones we've experienced with Riley. Do you have information you'd like to share about a child or adult with a 22q deletion? We'd love to hear from you. Please feel free to fill out the information below and we will post to share online with our online community. Thank you in advance for sharing your story!
Click here to view submitted stories.
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