Support Groups in the USA
Click here for Facebook support groups
GENERAL INFO PAGE 22q Facebook Support Group
Alabama
ALABAMA 22q Facebook Support Group
Alaska
ALASKA 22q Facebook Support Group
Arizona
ARIZONA 22q Facebook Support Group
Arkansas
ARKANSAS 22q Facebook Support Group
California
CALIFORNIA 22q Facebook Support Group
Northern California VCFS Support Network
Lucy Burke
426 Upton Street
Redwood City, CA 94062-2940
(415) 365-8755
andipat@ix.netcom.com
P.O. Box 2101
Rocklin, CA 95677-2101
(916) 624-1711
vcfsparent@aol.com
Chloe Love Foundation
Hillary Weiss and Susan Storaci
1044 Harrison Ave
Venice, CA 90291
(310) 463-6132
http://chloelovefoundation.org
Cheryl Dultz – Teacher
San Juan Unified School District
3738 Walnut Avenue
Carmichael, CA 95608
cdultz@gmail.com
cdultz@sanjuan.edu
(916) 979-8793 – work
(916) 725-5956 – home
Colorado
COLORADO 22q Facebook Support Group
Colorado Support Group
Lou and Susan Barnes
Boulder CO USA
303-443-9424
lbarnes@boulderwest.com
Connecticut
CONNECTICUT 22q Facebook Support Group
Delaware
DELAWARE 22q Facebook Support Group
Florida
FLORIDA 22q Facebook Support Group
Miami 22q: The Support Group for DiGeorge Syndrome & VCFS
Barbara Dandron
613 NW 43rd Way
Deerfield Beach, FL 33442
(954) 418-0188
SW Florida Support Group
Barb Southwick
780 Grand Rapids Blvd
Naples, FL 34120
(239)304-4491
barbsouth@comcast.net
Georgia
GEORGIA 22q Facebook Support Group
Atlanta 22q & You
Karlene Coleman, RN
1405 Clifton Road, NE
Atlanta, GA 30322-1101
404-785-6641
Parent to Parent of Georgia
Hawaii
HAWAII 22q Facebook Support Group
Idaho
IDAHO 22q Facebook Support Group
Illinois
ILLINOIS 22q Facebook Support Group
Chicago Area Support Group
Trish Pazdoich
pazfam5@sbcglobal.net
Internet Support Group: 22q11_chicagoland@yahoo.com
Illinois 22q & You Support Group
Georgiana Schuster
2305 Aspen Drive
Champaign, IL 61821
217-351-4995
Indiana
INDIANA 22q Facebook Support Group
Tri-State 22Q-VCFS Support Group
Contact: Bettsy Leech, Genetic Counselor
(513) 803-1884
vcfs@cchmc.org
Iowa
IOWA 22q Facebook Support Group
Iowa 22q/VCFS Support Group
Jennifer Kokjohn
306 Boone Street
Boone, Iowa 50036
(515) 432-0915
kokjohn@galynx.com
Kansas
KANSAS 22q Facebook Support Group
Kentucky
KENTUCKY 22q Facebook Support Group
Tri-State 22Q-VCFS Support Group
Contact: Bettsy Leech, Genetic Counselor
(513) 803-1884
vcfs@cchmc.org
Louisiana
Louisiana 22q/VCFS Support Network
Joy McClellan
Metairie, LA
(504) 250-1916
Facebook: Louisiana 22q/VCFS Support Network
vcfsla@gmail.com
Twitter: @22qLA
Maine
MAINE 22q Facebook Support Group
Maine Support Group
Sharon Smith
RR 2 Box 8780
Canaan, ME 04924
207-474-5374
mainelypsych@prexar.com
Maryland
MARYLAND 22q Facebook Support Group
Velo-Cardio-FacialMid-Atlantic Support Group
Julie Cooper
PO Box 14
Stevenson, MD 21153-0014
410-356-2003
Jcoops@comcast.net
Laura Dvornicky
410-740-3283
windingway1@home.com
Massachusetts
MASSACHUSETTS 22q Facebook Support Group
Northeast VCFS Support GroupLisa Jennings
385 North St
Weymouth MA 02191
781-335-6652
Supportive Genetic Counseling
Listening, Reflecting, Healing
Needham, Massachusetts
Phone: 781-366-5300
Email: mfgcgc@yahoo.com
Website: www.listeningreflectinghealing.com
Michigan
MICHIGAN 22q Facebook Support Group
MinnesotaM
MINNESOTA 22q Facebook Support Group
Mississippi
MISSISSIPPI 22q Facebook Support Group
Missouri
MISSOURI 22q Facebook Support Group
Angels with Missing Pieces
2601 NW Kingsridge Dr
Blue Springs, MO 64015
(913) 522-7706
contact@amp22q.org
www.amp22q.org
Missouri Midwest VCFS Support Group
Cardinal Glennon Children’s Hospital
St. Louis, MO
Kelly Lambeth
mynewlife67@yahoo.com
Montana
MONTANA 22q Facebook Support Group
Nebraska
NEBRASKA 22q Facebook Support Group
Nebraska 22q Family Support Group
Ann Stalker
815 West Beal Street
Lincoln, NE
(402) 435-0221
astalker@neb.rr.com
Nevada
NEVADA 22q Facebook Support Group
New Hampshire
NEW HAMPSHIRE 22q Facebook Support Group
New Jersey
NEW JERSEY 22q Facebook Support Group
22q & You New Jersey
Missy Disibio
1 Stafford Way
Marlton, NJ 08053
(856) 596-3365
misdino@aol.com
Margaret Preston
125 Beech Avenue
Hamilton, NJ
(609) 888-4293
The Int’l 22Q Deletion Syndrome Foundation
Carol Cavana
P.O. Box 424
Matawan, NJ 07747
877-739-1849
gunther702@aol.com
New Mexico
NEW MEXICO 22q Facebook Support Group
New Mexico Support Group
Kathy Weed
9629 Allande Rd, NE
Albuquereue, NM 87109
(505) 822-1871
fourweeds@comcast.net
New York
NEW YORK 22q Facebook Support Group
North Carolina
NORTH CAROLINA 22q Facebook Support Group
North Dakota
NORTH DAKOTA 22q Facebook Support Group
Ohio
OHIO 22q Facebook Support Group
Tri-State 22Q-VCFS Family Support Network
Cincinnati Children’s Hospital Medical Center
22Q-VCFS Center, MLC 4006
3333 Burnet Avenue
Cincinnati, OH 45242
Contact: Bettsy Leech
(513) 407-8883
vcfs@cchmc.org
Nationwide Children’s 22q Center Family Support Group
Lisa Repaske, LISW
Nationwide Children’s Hospital
Columbus, OH
614-722-6733
Lisa.repaske@nationwidechildrens.org
Oklahoma
OKLAHOMA 22q Facebook Support Group
Oregon
OREGON 22q Facebook Support Group
22q Family Support Network of Oregon
Linda Garrison
2946 NE 12th Avenue
Portland, OR 97212
(503) 281-4018
Jljsgarr@aol.com
Pennsylvania
PENNSYLVANIA 22q Facebook Support Group
International 22q11.2 Deletion Syndrome Foundation, Inc.
4 State Road, #201
Media, PA 19063
(877)-739-1849
Philadelphia Area 22q & You
Sharon Rehm
1213 Orchard Road
Lititz, PA 17543
embroidery@supernet.com
Terri Horn
233 Ruby Drive
Collegeville, PA 19426
610-454-0767
John and Kimberly Sullivan
619 Churchville Lane
Holland, PA 18966
215-396-7260
sullivan14@comcast.net
Jill Brooks
2945 Penn Valley
Bristol, PA 19007
215-788-7099
kevinjilb@aol.com
Families Advocating for Chromosomal Education (FACE 22) (South Western Pennsylvania)
Tammy Rose
724-622-6096
tammy.rose@face22.org
Rhode Island
RHODE ISLAND 22q Facebook Support Group
South Carolina
SOUTH CAROLINA 22q Facebook Support Group
South Carolina Support Group (NC, SC, GA)
Jim and Karen Roberson
10 West Glohaven Place
Simponville, SC 29681
jkroberson@mindspring.com
South Dakota
SOUTH DAKOTA 22q Facebook Support Group
Tennessee
TENNESSEE 22q Facebook Support Group
Texas
VCFS Texas, Inc. (22q Texas) – official statewide non-profit Facebook Support Group
TEXAS 22q Facebook Support Group
Texas VCFS Support
www.vcfstexas.com
Austin/Central Texas Area
Courtney Helford
Phone: 512-332-0368 / 512-304-5669
Email: chelford@vcfstexas.com
Dallas area
Ashli Cheung
Phone: 214-731-9393
Email: acheung@vcfstexas.com
Heather Holder
1904 White Ave. Apt 703
McKinney, TX 75069
Phone: 972-542-0455
Email: heather22q@gmail.com
East Texas / Houston area
Megan Wawarofsky (Houston area)
Phone: 832-630-9915
Email: mwawarofsky@yahoo.com
April Solomon (East Texas)
Phone: 903-968-2037 / 903-261-1180
Email: Texasangel0000@yahoo.com
En Español
Deborah Trejo
Phone: 512-909-8359
Email: dtrejo@vcfstexas.com
Utah
UTAH Facebook Support Group
22q & “UtahVCFS/DiGeorge FamilySupport Group
Amy Steadman
3192 W. 7325 Street
West Jordan, Utah 84084
(801) 562-0665
asteadman@br.state.ut.us
Vermont
VERMONT 22q Facebook Support Group
Virginia
VIRGINIA 22q Facebook Support Group
Rebecca Draznin
10280 Colony Park Drive
Fairfax VA 22032
(703) 764-1652
RDraznin@advanceconcepts.com
Washington
WASHINGTON 22q Facebook Support Group
VCFS/DiGeorge Family Support Network of Washington
Rhonda McElroy
22204 39th Avenue West
Mountlake Terrace, WA 98043
425-712-9384
rhm10@juno.com
Washington D.C.
Rebecca Draznin
10280 Colony Park Drive
Fairfax VA 22032
(703) 764-1652
RDraznin@advanceconcepts.com
West Virginia
WEST VIRGINIA 22q Facebook Support Group
Wisconsin
WISCONSIN 22q Facebook Support Group
Wisconsin VCFS/DiGeorge FamilyAdriane Baylis, PhD
wivcfsgroup@hotmail.com
Wyoming
WYOMING 22q Facebook Support Group
Facebook Support Groups
ALABAMA 22q Facebook Support Group
ALASKA 22q Facebook Support Group
ARIZONA 22q Facebook Support Group
ARKANSAS 22q Facebook Support Group
CALIFORNIA 22q Facebook Support Group
COLORADO 22q Facebook Support Group
CONNECTICUT 22q Facebook Support Group
DELAWARE 22q Facebook Support Group
FLORIDA 22q Facebook Support Group
GEORGIA 22q Facebook Support Group
HAWAII 22q Facebook Support Group
IDAHO 22q Facebook Support Group
ILLINOIS 22q Facebook Support Group
INDIANA 22q Facebook Support Group
IOWA 22q Facebook Support Group
KANSAS 22q Facebook Support Group
KENTUCKY 22q Facebook Support Group
LOUISIANA 22q Facebook Support Group
MAINE 22q Facebook Support Group
MARYLAND 22q Facebook Support Group
MASSACHUSETTS 22q Facebook Support Group
MICHIGAN 22q Facebook Support Group
MINNESOTA 22q Facebook Support Group
MISSISSIPPI 22q Facebook Support Group
MISSOURI 22q Facebook Support Group
MONTANA 22q Facebook Support Group
NEBRASKA 22q Facebook Support Group
NEVADA 22q Facebook Support Group
NEW HAMPSHIRE 22q Facebook Support Group
NEW JERSEY 22q Facebook Support Group
NEW MEXICO 22q Facebook Support Group
NEW YORK 22q Facebook Support Group
NORTH CAROLINA 22q Facebook Support Group
NORTH DAKOTA 22q Facebook Support Group
OHIO 22q Facebook Support Group
OKLAHOMA 22q Facebook Support Group
OREGON 22q Facebook Support Group
PENNSYLVANIA 22q Facebook Support Group
RHODE ISLAND 22q Facebook Support Group
SOUTH CAROLINA 22q Facebook Support Group
SOUTH DAKOTA 22q Facebook Support Group
TENNESSEE 22q Facebook Support Group
TEXAS 22q Facebook Support Group
UTAH 22q Facebook Support Group
VERMONT 22q Facebook Support Group
VIRGINIA 22q Facebook Support Group
WASHINGTON 22q Facebook Support Group
WEST VIRGINIA 22q Facebook Support Group
WISCONSIN 22q Facebook Support Group
WYOMING 22q Facebook Support Group
GENERAL INFO PAGE 22q Facebook Support Group
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