Resources
Information about 22q11.2 Deletion
What is 22q11.2 Deletion? (PDF)
General Information
- Chromosome 22 Central
- Families Advocating for Chromosomal Education (FACE 22)
- International 22q11.2 Deletion Syndrome Foundation, Inc.
- Genetics Home Reference
- Immune Deficiency Foundation
- American Heart Association
- www.22q.org
- Guidelines for Care (PDF)
Additional Information
- Chromosome Help Station
- For GeneReviews
- ImmuneDisease.com
- Hypoparathyroidism (UK)
- Opitz G/BBB syndrome
- Speech and Language reference (Max Appeal, UK)
- Wrightslaw
- Council for Exceptional Children
Specialty Centers & Services
- 22q Center at Nationwide Children’s Hospital (Columbus, Ohio)
- 22q Center at Nationwide Children’s Hospital Facebook Page
- The 22q and You Center (Children’s Healthcare of Philadelphia)
- The Center for Pediatric Feeding and Swallowing (St. Joseph’s Children’s Hospital)
- Elwyn Genetics, Consultative Services for Schools
- Southeastern Regional Center of Excellence for 22q
- Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
- Children’s Heart Federation (UK)
- The Mayo Clinic (Pediatrics)
- VCF Clinic (Children’s Hospitals and Clinics of Minnesota)
- Culter-Landsman Consulting
- Upstate Medical University – Robert J Shprintzen, Ph.D.
- UC Davis MIND Center – Chromosome 22q11.2 DS Educational Videos
- Dolmetsch Lab (Stanford University)
- Chromosome 22 Central
- Max Appeal (UK)
- Pour le Syndrome de DiGeorge Fondation Amanda Raymond-Lamoureux
- Family Activity Week at Dragonfly Forest Camp (a partnership between Elwyn Genetics and the Dempster Family Foundation)
Support Groups in the United States
International Support Groups
Listserv Information
- 22q11 & You Listserv
- VCFS & DiGeorge Listserv
- VCFS Listserv
- 22q11 and You Listserv
- Spanish Listserv (email for information)
Camps
Educational Resources
- 22q educational videos (UC Davis)
- National Information Center for Children and Youth with Disabilities
- A Different Life: growing up learning disabled and other adventures by Quinn Bradlee
- American Speech-Language-Hearing Association
- Educating Children with Velo-Cardio-Facial Syndrome by Donna Cutler-Landsman
- START-to-FINISH Books -reading solutions
- Helping a Child with Nonverbal Learning Disorder or Asperger’s Syndrome: A Parent’s Guide by Kathryn Stewart
- Helping the Child Who Doesn’t Fit In by Stephen Nowicki and Marshall P. Duke
- Nonverbal Learning Disabilities at School by Pamela B. Tanguay and Sue Thompson
- Teaching Your Child the Language of Social Success by Marshall P. Duke et al
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